AWARENESS WEEK

Duchenne Muscular Dystrophy

Duchenne Muscular Dystrophy (DMD) is a rare progressive disorder. People with DMD are missing muscle-protecting protein. This is due to a fault in the gene producing dystrophin. Muscles to become weaker over time until it affects the whole body. It is caused by a mutation on the X-chromosome, that is why mainly males are affected.

First walking becomes difficult, then other motor functions follow and ultimately it affects the ability to breathe as well as the function of the heart, as the heart is a muscle too. The missing protein also has a function in the brain, so learning- and behavior issues can also be part of the disease.

In most countries, the average age of diagnosis of DMD is above 4 years of age and the diagnostic delay around 2.5 years. Parents see symptoms much earlier and some symptoms are already visible when the children are very young.

Duchenne Muscular Dystrophy is named after Dr Duchenne de Boulogne, who was one of the first to report the disease in detail in the 1860’s.

Important News

There are growing numbers of adults with Duchenne Muscular Dystrophy living well into their fourth decade. These patients have complex medical needs that to date have not been addressed in the International standards of care.

🎉🏇Thank You for Making Our Race Night a Success!🏇🎉

A heartfelt thank you to everyone who supported our recent Race Night event, whether by joining us in person or cheering us on from afar. Your enthusiasm and generosity helped us achieve something truly remarkable.

Together, we raised an incredible £628.87, bringing us one step closer to realising our dream of registering our charity. Your support means the world to us, and we are deeply grateful for each and every contribution.

🎉🥇Congratulations to Our Sponsor Horses Winners🥇🎉

Race 1: Anne O'Loughlin - £10

Race 2: Caroline Bateman - £10

Race 3: Kerry Burton - Kiddies Race Tub of Jelly Beans

Race 4: Geraldine Davies - £15

Race 5: Adam Hughes - £15

Race 6: Julie Nash - £30

Race 7: Lou Ryan - £30

Race 8: Hayley Hughes - £30

A round of applause to all the lucky winners! Your participation made the evening even more special.

And a special thank you to everyone who sponsored horses, helping us to make a real difference through our charity.

Your support continues to inspire us, and we look forward to sharing more successes with you in the future. Together, we can achieve anything!

With heartfelt gratitude,

Bradley's Promise