Bradley’s Promise is unwavering in its commitment to providing essential services to support the needs of young people aged 16–25 living with life-limiting conditions, with a special interest in Duchenne Muscular Dystrophy, and their families, most live up to is 19 years old which Bradley did not achieve this milestone with Duchenne Muscular Dystrophy
To achieve this, we aim to build an extensive Information Hub for a one stop network of support align with our mission.
However, to kickstart this endeavor, we need your support. We are in the initial stages of raising funds to become a registered charity, allowing us to launch campaigns and lay the groundwork for the future development of the Information Hub.
Come join us in our passionate pursuit to fulfill Bradley's Promise - ensuring that no young person with this condition has to endure the challenges and lack of support that Bradley did. As Bradley's mother, I made a solemn vow to him that no other families should suffer through the same lack of support.
Your support can make a difference.
Duchenne muscular dystrophy is characterised by muscle degeneration due to the absence of dystrophin, a crucial protein. Typically, this condition predominantly affects males. In the UK, approximately 100 boys are born with Duchenne muscular dystrophy each year, with around 2,500 boys and young men currently living with the condition. The general population faces a risk of one in every 3,500-5,000 male births for having a child with Duchenne muscular dystrophy.
This disorder leads to progressive muscle weakness as a result of the dystrophin protein deficiency. The breakdown of muscle fibers occurs, and they are subsequently replaced by fibrous or fatty tissue, leading to a gradual weakening of the muscles.